Last night before we were discharged the pediatric neurologist came (back from his home) to make sure we were clear on the medications and give us the final MRI results. The great news is the MRI didn't show any new problems or areas of concern. He did see the 3 calcium deposits but, he said they were even harder to see on the MRI than the CT scan. He is really hopeful that Oliver is going to live a healthy, long, productive life. Once the genetic tests results come back (4-8weeks) he plans to make a formal diagnosis of Tuberous Sclerosis. We'll go back and see him in 4 weeks for a follow-up. I am sure as time goes on we will know more about the daily reality of coping with TS. We have a long road ahead of us and lots more appointments but, we are going to make it through. We are so thrilled to have our wild man back! I think as we arrived home we just felt wave after wave of relief that we hadn't lost him (as we thought me might on Sunday).
We thank God for all the ways He sustained us. We're thankful for all the ways your prayers, gifts, etc. have helped us carry on and keep our eyes on Him. We will never know how to properly thank you for all you have done. We have been surrounded by a great cloud of witnesses and it has given us an eternal perspective that we'll always cherish.
1 comment:
Much love...many prayers. I soooo look forward to keeping up with you and Oliver thru your blog, and enjoy all the fun posts. When Alana called and asked if I had seen the past few days, I hadn't. I immediately got on and read with a heavy heart all that Oliver was going through. I'm so grateful for your faith and God's love. I know He is with you!!
I'll be looking for updates.
Hang in there.
Claudia and Brian
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