Updates

This picture is from a visit from Andrew's cousin Tad and his girlfriend Monse. They are such a fun couple and Oliver loved being with them.

We also had Oliver's developmental assessment on Friday. He did really well considering he was in a particularly bad mood. One thing we mentioned is that he used to say "da-da" and "dog" but, it seems that he either can't, or won't say the "d" sound anymore. The psychologist wasn't worried about this but, they just want to make sure nothing else like that happens. The plan is for Oliver to be retested when he is 24 months old. Once again we are feeling really thankful for more good news.

As of right now the next step is going to the pediatric dentist this week. Then on September 7th to Chapel Hill for our follow-up with the pediatric neurologist. We are also anxiously awaiting the genetic testing results. We should have those by the end of September. This will be very helpful for us as we consider how to grow our family either biologically or through adoption. We are taking it one step at a time but, it feels good to have most of our appointments completed.

We continue to be thankful for your prayers and support. You continue to help us walk through this unusual time and we are so grateful. We are only at the beginning of our journey with TSC. We treasure each "normal" day because, we are aware that it may change at anytime. Through the TS Alliance I have recently joined a listserv for parents of kids with TSC. The best part is realizing how blessed we have been so far with Oliver. The hard part is reading how difficult things are for many of these families. I am learning a good deal just from being part of that community. It is not a club I would have planned on joining but, we are in, so we're going to make the best of it.