Singing and Dancing

I write this as Oliver tries to sing to Mom and Mudder. This is very encouraging. He has also tried to dance...it is so precious. He mainly wiggles his tummy since he can't move his head or arms. It is nice to see small glimmers of his personality coming through. I'll get Andrew to make a video sometime today and we'll post it.

Andrew working from this crib. Oh, the joys of being self-employed :) 

EEG screen

Oliver also has a new veil bed. It is making it much easier for us to cuddle with him. We also can sleep in there with him which Andrew did all last night. This is much better fir for a 6'4'' man stuffed into a metal crib :) 

Oliver and his I-Pad

Mom and Mudder (our angels this week) spending time with Oliver in his new, big bed

He had a few hours of crying this morning. That wears me down. He was so miserable so they gave him Ativan to settle him down. He clearly is feeling pain and is irritated with his IV and swollen shut eye. He is even crying out of the black eye...so sad! Thankfully the Ativan worked and he is more comfy right now. 

Andrew is now in the sleep room, resting up for the arrival of his parents this afternoon. They came in early to beat Hurricane Irene. 

Speaking of the hurricane I wrote a piece about how this experience feels like a hurricane. I never posted it because it was terrible. First drafts are a disaster in and of themselves. 

The timing of this real hurricane seems almost poetic to me. I thought so much about how preparing for a hurricane was like preparing for this experience. I think we've made it through the eye-wall of Oliver's medical hurricane, but only in hindsight will we be able to say what was the worst part. 

Swelling is a bit better today...

Thank you for your love and support. The nurses are loving the ways you have thought of caring for them. Today we plan to treat our nurse, Pam to Starbucks. The staff is also loving the daily candy rotation that I mentioned in an earlier post. We are getting excellent care and feel 100% confident we chose the right place for this surgery.