Morning Update: Oliver is having a VCUG to check his bladder function at 10:30 and a MRI of his brain (and maybe spine) this afternoon. After that we have to confirm he can drink and walk normally before we can leave. So right now I am thinking our best case scenario is leaving Saturday. Obviously, if they find anything significant with either test then we may have to stay. We hate to have another waiting filled holiday weekend in here, especially since he is struggling with it so much more now. BUT we don’t want to rush out of here and have to take an ambulance back. We are being trained on how to cath him (fun times!) and trying to decide about the oxygen needs once we return home. Your prayers for our stamina and clear thinking are appreciated. We are obviously driving many decisions and after 5 hospital stays and sleep deprivation for months we aren’t as sharp as normal. We’ll update this afternoon once we have results of the tests. Nurse John stayed last night and we stayed at a friend's house that is 4 minutes from the hospital. They have a little room off their basement that is quiet and private. We feel better having gotten 7 hours of sleep. John is a saint and Oliver did not have any significant desaturations last night, which is encouraging.
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