Friday, January 6, 2017

1-6-16 Update

Oliver had a difficult night with a considerable amount of pain from his surgery. He has been showing a surprising amount of emotion in the past 4 or 5 days, at times crying real tears in his discomfort and frustration. In the last two weeks, we are happy to have removed several powerful drugs from his regimen, and think that his new behaviors are a result of these changes.

Today he began his first feeding at 2PM,  but it got off to a rocky start with some vomiting.  We are hopefully back on track over the last two hours, and will try food and drink by mouth tomorrow. Even with the g-tube, Oliver will still be able to "eat for pleasure", and his meds and weight gain goals can be met with the tube. We have a binder wrapped around the site that will help keep his impulsive little hands off the surgery site.

We are shooting for a Sunday discharge, pending how well he tolerates the feeding and of course the ding-dang snowstorm.

1 comment:

Mrs. M said...

So much for you guys to process and learn and prepare/plan. Oh Stephanie, what a journey!
Praying that healing from the surgery comes quickly. Praying you and John receive copious amounts of teaching and support in these changes and transition home.
Praying for you all.
xx
Margo