Oliver is continuing to have seizures (2-3 at least) per day. We have doubled the dose of the second med, Keppra. So far, even with the increased dose, the seizures are still occurring :(
This amount of medication is making Oliver tired but, he is still fun and wild most of the time. The most difficult part for us is the 3 times a day medication administration. One med is a liquid and one is a pill we crush up and mix with pudding, ice cream, applesauce, etc. There aren't many things that are more stressful than trying to get an uncooperative toddler to take medication- particularly when the stakes are this high. If you have kids I am sure you can imagine how this goes down.
We meet with our UNC doctor in Wilmington on Dec. 3rd (much sooner than originally planned). We also got an appointment with Dr. Mikati at Duke in February. This odyssey of trying to find the right med/dose is very typical of TSC seizures. We just have to hang in there and remember to put our hope in the Lord. Thanks for your continued prayers and support.
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