Wednesday, April 13, 2011

Back to Normal



Sorry for the bullets-so much to say...

  • Since my last mega-post we decided we are not doing the Ketogenic Diet right now. Jim (my father-in-law) noticed that if we introduce the Keto Diet and Topamax at the same time we won't be able to figure out which one is working. That made sense to us and also made me feel relieved. This allows us to let Oliver drink as much water as he wants which solves some of the issues with Topamax. Dr. Mikati was in total agreement with us about this but, did ask if we could stick with the Low Glycemic Index for now. I feel fine about this because again, if we go changing too many variables, it makes things more confusing for Oliver's treatment. However, I am going to relax a bit about the LGIT. Go with the flow a bit more and slowly bring back in some carbs. I'll still keep the foods similar for now as we work through all of this. Overall, I feel like the death-grip of the diet has abated.
  • The Topamax is controlling the seizures but it is making Ollie VERY dopey. He is like a drunk sailor all day long. He is falling and floppy- a continual space cadet. It is a challenge to keep him from hurting himself as he seems to have no spacial awareness. We are hoping this will get better. We plan to call the doctor tomorrow if there isn't improvement.
  • As far as Oliver's development we have no idea where he is since the side effects are so problematic. When his seizures went away before he usually "took off" developmentally. This time we can't tell much due to the fact that he seems stoned most of the time. It is frustrating to "fix" one problem (the seizures) but trade it for another (drunk toddler). I mean we are thankful, but we also miss our wild, alert Oliver.
  • The photos above are from his Easter Egg Hunt at preschool. The teachers there are so wonderful. I feel such gratitude for their prayers and love. Those hours each week when I get a break and know that Oliver is safe and well cared for, are precious to me. Anyway back to the hunt, Oliver, just wasn't into it. I just decided to let it be. Another year, hopefully and he'll get it?

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