Richer, fuller be

Rocky woke up around 5AM and was uncomfortable. We removed the catheter and hope we won't have to replace it. He also got another dose of morphine and some Benadryl to help with the itching. He watched an episode of Yo Gabba Gabba. He even tried to do a little dance when the opening song came on. Precious little thing!

I got 5 hours of sleep so I feel like a new woman. Andrew is in the sleep room and hopefully will emerge well rested. It feels like having a newborn. If you have a kid you know this kind of sleep deprivation. It can feel like torture and yet, you make it :)

Oliver has had one seizure this morning and something that looked like one. We look forward to hearing from neurology about where these seizures are coming from and what this all might mean.

At this point it looks like surgery is going to be Monday or Tuesday (most likely Tuesday).

A sweet friend of mine, Michelle Poulos, reminded me of this hymn that we sing at CCC and I love. My favorite line is “that morn shall tearless be”---good way to start this morning!

This first two photos are from last night at 11 PM 

 This morning at 7 AM. The eye looks even worse which is to be expected. Looks painful, right? 

Love That Will Not Let Me Go

O Love that wilt not let me go,
I rest my weary soul in thee;
I give thee back the life I owe,
That in thine ocean depths its flow
May richer, fuller be.

O light that foll’west all my way,
I yield my flick’ring torch to thee;
My heart restores its borrowed ray,
That in thy sunshine’s blaze its day
May brighter, fairer be.

O Joy that seekest me through pain,
I cannot close my heart to thee;
I trace the rainbow through the rain,
And feel the promise is not vain,
That morn shall tearless be.

O Cross that liftest up my head,
I dare not ask to fly from thee;
I lay in dust life’s glory dead,
And from the ground there blossoms red
Life that shall endless be.