Thursday, February 27, 2014

Clinical Trial Begins...



This photo is from Oliver's very first EEG when he was 19 months old. It has been 1,306 days since that August afternoon. Epilepsy was a monster then and it still is.

We hope CBD will bring him some relief, so tonight we'll be rising at 2:45 AM to drive to Raleigh for our flight to Boston. We'll have two appointments to begin the clinical trial. We arrive back in Raleigh at 9 pm. This kind of travel, with a medically fragile child, will be brutal.

No CBD at this baseline appointment, but this is the preparation for what lies ahead. In our hearts we pray for a miracle, in our heads we know we have to be realistic. This is a hard place to live for 1,306 days...our hearts are so weary of the failed treatments. Even so we feel so incredibly grateful for this opportunity! There are so many children without access to this life saving treatment.

Thanks for cheering us on in this wild adventure. It helps to know we are not alone.

And let us run with perseverance the race marked out for us, fixing our eyes on Jesus, the pioneer and perfecter of faith.  - Hebrews 12



3 comments:

Unknown said...

Hi Stephanie this is Mrs. Annie from UCP I wanted to let you know that my prayers are with you guys as you travel. We will definetly miss Ollie tomorrow but we are so excited to see if this great opportunity will open new doors for him. Good luck with the ride and we can't wait to see you guys next week. Thank you so much for choosing us to be apart of his life he truly is a blessing to have in our class. :)

Linda said...

Oh Stephanie will be saying prayers for peace and rest as you go on this journey and for encouragement from the Lord that He has a plan for healing for Oliver ~~ that He will strengthen you and Andrew for each new journey He carries you on.
Blessings and love to you all,
Linda

Unknown said...

Hi this is Mrs. Annie from ucp we have missed Ollie today. We are all hoping and praying for you guys. We hope this will open up great big doors for Ollie and we can't wait to see you guys back this coming week give him love from us.
:) :)