21.5 Hours

After 21.5 non-stop hours we woke up this morning to feeling as though we had an epic hangover.

We spent about $1,000 in those short hours and although I feel like I took 10 vodka shots and rode a bull, I did neither.

Are we crazy? Sure, but whatever it takes for Oliver!

Our little superhero!

Our prayer was two fold. First, that we would have eyes to see the goodness of God in this, and also that Andrew and I would remain a team. Travel together with someone for that long and no matter what you say at hour 20, it will probably sound "snappy"! We just decided to not talk and listen to "This American Life" for hour 19-21.5. Good plan if you ever find yourself in this situation :-)

When you have eyes to see there are blessings everywhere. First, all our travel arrangements went as planned (this is huge in the Northeast in the winter).

We got to hang out with the Farrell family, who graciously picked us up at the airport and cooked breakfast for us. There could not be a more generous family in Boston; they are so good to us. We also took a nap at their house before our flight out of town. They are exceedingly more than we could have asked or imagined.

We were amazed again at how blessed we are to be in this drug trial. 125 kids out of 300,000 in America with Epilepsy. We are so blessed and thankful.

Finally, we were surprised by our A-mazing occupational therapist, Seth, who stopped by today with a meal and bottle of wine for dinner tonight. Totally unexpected and so thoughtful. We don't deserve how good you all have been to us. For the emails, texts, funny cards, videos, hugs, thank you.

More like a face plant than a kiss, but I'll take it!

It feels like we are running an endless marathon and despite the finish line moving constantly, we have an army of amazing people cheering us on, binding up our broken hearts, shouting encouragement, and feeding us along the way.

Our marathon times, roughly.

Our doctor has asked that we not put much of the details of the trial on social media due to its sensitive nature. Of course we agreed and understood. Here is what I can tell you: we will start in the med in the next few months and it will be in liquid form. We will make 15 trips total to Boston and 9 of those will include Oliver.

We love you all and are grateful for each of you.