Sunday, July 13, 2014

CBD Oil Legalized in NC for Epilepsy Treatment!

We're off to Boston again this week. Oliver will have a 24 hour EEG. It will be the first one since he began the clinical trial!


I love this picture from when Oliver was little 


Last week CBD Oil was made legal in NC! It was a great victory for our family and so many others. Many people have worked so hard on this issue for years and it is beautiful to see their efforts pay off. I have to thank my aunt Robin and my dad for their advocacy in the Concord, NC area. It was encouraging to see our legislators get something right. This time they did something that really matters.


FAQs about the CBD Oil:

Is the oil working for Oliver?
It is too early to say for sure due to the “Honeymoon Phase” that  often happens with seizure meds. We can say that Oliver’s tonic seizures are significantly reduced and his words are slowly coming back. He is much brighter and engaged than he has been in over a year and we are overjoyed. It almost feels like re-meeting him again.

Will this law change anything with your travel?
No, we are still in the clinical trial in Boston and still have to travel to get the med. There is a slight possibility it could change after the initial year, but that is very uncertain.

How will NC families access the oil?
We aren’t experts, but it appears there is still a decent amount of ground to cover on how it will work. It will be a card/voucher that is given with the supervision of a neurologists. Our understanding is the Department of Health and Human Services will administer the cards.

How can we help?
Now we need movement on the federal level. This article is a great resource and explains the federal issue quite well:
http://www.washingtonpost.com/blogs/local/wp/2014/06/19/fairfax-frederick-moms-lobby-feds-for-medical-marijuana-for-kids-with-epilepsy/

2 comments:

Anonymous said...

This is fabulous! So glad to hear things are initially going well for Oliver. Congrats!

Heather

Mrs. M said...

How wonderful!!!
Wonderful that you are trialling the oil. Wonderful that legalization has come through.
Hugs & prayers.
Margo