Wednesday, August 31, 2011

Leaving Hospital Soon...

Oliver's night was a mixed bag. He had to get a new IV put in at 4 AM which made him very unhappy.

His head has become very swollen on the left side but, his eye seems like it won't swell shut.

We are thinking we may go home today or tomorrow. Oliver, other than his pain, seems to be like a caged animal.

Andrew was with Oliver from 4AM to 9AM (I was in the sleep room). He said he thought he saw a small seizure. I also thought I had seen a few. Of course we feel disappointed, even though Dr. Thiele told us at least 10 times that this is to be expected in the first days after surgery.

When she came in this morning I started crying. The idea that we did all this and it might not have worked just felt like more than I could take. She reminded me that even if he still does have seizures, they are usually much easier to control with meds than before. The other important reminder was that we got the tissue out that was creating the constant static in Oliver's brain, and this should improve development and cognition.

The bottom line is, time will tell whether the surgery worked. Regardless, we have a peace that we made the right decision. This experience wasn't meaningless. We've already gotten out areas that were hurting, not helping Oliver. We can also come back and take out more if that is necessary (imagine going through this again. No thank you!). There are still options, and there is always hope.
Thank you for continuing to pray.

Grandads are great to share a meal with, and watch some Elmo...






Thanks so much to Jim and Anne for helping us so much. We love you both!

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